NICK PERKINS: KICKING MS IN THE NICK OF TIME

This site is dedicated to my personal Journey. To see our Charitable Trust work visit below:

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We have completed our fundraising for my personal trip however we are still working on our Charity to allow others to go and get the same treatment. If you would like to help please click below
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MY STORY

On the 12th of September 2014 I was diagnosed with Multiple Sclerosis
On the 30th July 2014 I was struck with loss of vision in my left eye, Needless to say thats a scary thing to wake up to.. After going to work, pretending I was ok, I went to the optometrist to get a check.. move forward through numerous doctors visits and an MRI scan I was officially diagnosed with Multiple Sclerosis on the 12th September 2014. After over a year taken to really come to terms with the diagnosis we finally started to look into options and on the 20th February 2016 we started fundraising for HSCT in Singapore, We are working on reaching a goal of around $200,000 to Kick this MS in the Nick of time and aim to get back to a normal family life without this insidious disease hanging over our shoulders. This page helps to chronicle that journey.

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% PATIENTS WITH RELAPSING-REMITTING AT ONSET OF DISEASE

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% PATIENTS WITH RELAPSING-REMITTING THAT PROGRESS TO SECONDARY-PROGRESSIVE

MY FAMILY

My amazing family who have stuck with me through all of this and have been incredible!

Nick Perkins

Nick Perkins

Me!

I am the lucky guy who gets all his support from the huge team around him, My Family, immediate and extended, and a huge team of supporters all over the world.
Danielle Perkins

Danielle Perkins

Wife and closest supporter

My beautiful wife is by my side every day, always checking how I am, coming with me to every appointment, I could not do this without her.
Thomas Perkins

Thomas Perkins

Oldest Son (Mr 5)

My Oldest boy, Full of attitude and a bundle of loving cuddles. Never a time that a cuddle from my boy wont help me feel better
Lachlan Perkins

Lachlan Perkins

Youngest Son (Mr 3)

This little man can light up a whole room with his cheeky grin. He is always ready for a cuddle and makes life so much nicer when he is cuddled up in your arms. Learning new stuff every day and forever impressing us
Not to mention a HUGE league of supporters out there of Family, Friends and a huge community around us and for all of you we are eternally grateful!

25th March – Auction Total, Shave Off, The Final Run!

Auction Total, Shave Off, The Final Run Auction Total: The Auction Total is in!, We raised a whopping $21,685.60 on the night at our auction. And what an amazing night it was to. Thank you so much to everyone involved. All our numerous auction item sponsors, our...
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19th Feb – Not Long Now, Events!

Not Long Now, Events! Holy Smokes! This year is FLYING by, I haven't done a full post for a while, but have been busy organizing things in the background for some time. I can;t believe how close it is now until we fly out and this thing actually happens, that is very...
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31st Dec – New Year, New Challenge

New Year, New Challenge It is the end of the year, and what a year! Holy Smokes I can't believe how much you have all helped us achieve this year. It is truly amazing, we close the year JUST under the half way mark with: $98262 It is hard to get my head around such an...
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13th Dec – An Open Letter to our Supporters

This is an open letter to all our supporters out there all over the world.. It is coming to the end of the year and what a crazy one it has been. I fell like I should start this letter with a few apologies. This fundraising malarkey has well and truly snow balled this...
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11 Dec – Star Wars, Grocery Grab, Cake Stall

Star Wars, Grocery Grab, Cake Stall Well. first of all. We had a brilliant time out with Santa on Saturday at the Official Opening of Eastwood Motor Groups new Kia/Suzuki Showroom. Thanks to everyone that came along and a very special thanks to Tom Roseingrave who...
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1st Dec – Up and Coming

Up and Coming Just a quick post with a quick run down of things up and coming and some on-going fundraisers on at the moment. We have JUST now booked flights and accomodation for SIngapore which I am not going to lie is scaring the living bejesus out of me. It has all...
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27th Nov – Events, Thanks, Raffles

Events, Thanks, Raffles Hi All, I have a fair bit to get through in this post so here tonight so I am going to put a few links here to help people jump to any section they might be interested in. First of all we have a few upcoming Events 4th December we have the...
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14th Nov – Shakes, Dates, Events

Shakes, Dates, Events Shakes Sheesh, what a rolly night. Really nothing to do with MS but couldn't really ignore it. Hope everyone out there is...
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1st Nov – Upcoming Events

Upcoming Events It has been a while since I have done a full-scale post for the web site, so here goes. We have been toiling away in the background with a lot of help putting things together and we saw a lot of you last Saturday for our Halloween night which was great...
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25th Sept – Thanks, Site Update, Other Things

Thanks Hi Everyone, This update has been a while coming sorry. It has been a hectic few weeks so I just trying to catch up now. If I miss anything in this post please don't be offended, I am doing my best to remember everything, just shoot me a message and I promise I...
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MEDIA

Five-year-Old looking forward to doctors fixing 'dad's broken brain'
Nick and Danielle Perkins with children Thomas, left, and Lachlan.

When you walk into the Perkins family home in Carterton, there is a picture of a figure on a chalkboard with some lines and squiggles in its head.

Nick Perkins explains that it is his 5-year-old son Thomas’s drawing of “Dad’s broken brain”.

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NZME Auction Interview
NZME Interview about Auction Night

Played on ZM, The Hits, Radio Sport and Newstalk ZB

Mediawork Radio Advertorial
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We have been VERY kindly donated some advertising with media-works across their 9 Radio Stations Locally (The Edge, The Rock, Main FM, Radio Live, More FM, The Sound, The Breeze, Magic, George) by Ondy Herrick Real Estate, Listen to the Ad below, Thank you so much Ondy!

'A Silent Disease': Nick's brave battle against MS

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‘A Silent Disease’: Nick’s brave battle against MS

‘I am still guilty of thinking he looks normal, but I know he is putting on a brave face and no one can truly understand what is really going on inside.’

An amazing story written by my Sister-in-Law Angela Morris and published to Stuff’s 415,000 Facebook followers

Stuff 29/09/2016

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NZME Advert Interview

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NZME Radio Advert Interview

Played on ZM, The Hits, Radio Sport and Newstalk ZB

Carterton dad’s MS battle

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Carterton dad’s MS battle

A Carterton man is on a mission to raise money for overseas medical treatment so he can beat his multiple sclerosis and get back to being a regular dad to his kids.

Wairarapa Times-Age 01/09/16

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Auction and generous community help Carterton Dad

Auction and generous community help Carterton Dad

Nick Perkins is looking to a “fun night out” and auction to raise the lion’s share of the funds needed for his groundbreaking stem cell treatment.

Wairarapa Midweek 06/04/2016

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Dad pins hopes on revolutionary treatment

Dad pins hopes on revolutionary treatment

Nick Perkins is looking to a revolutionary stem cell treatment to give him the chance to be a regular Dad.

Wairarapa Midweek – 10/03/2016

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